| Ultra-Violet: One Girl's Prader-Willi Story Contributor(s): Frisk, Debbie (Author), McCutchin, Chelsea (Author) |
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ISBN: 1939418704 ISBN-13: 9781939418708 Publisher: Rtc Publishing OUR PRICE: $12.34 Product Type: Paperback Published: September 2014 |
| Additional Information |
| BISAC Categories: - Family & Relationships | Children With Special Needs - Education | Special Education - Developmental & Intellectual Disabilities - Education | Special Education - Physical Disabilities |
| Physical Information: 0.17" H x 6.69" W x 9.61" (0.32 lbs) 82 pages |
| Themes: - Topical - Mentally Challenged - Topical - Physically Challenged |
| Descriptions, Reviews, Etc. |
| Publisher Description: Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet. |